Australians who suffer from a rare disease that causes gigantism will benefit from a Turnbull government subsidy that will give them cheap access to a drug that normally costs $50,000 a pop. Acromegaly, a pituitary disorder that causes the abnormal growth of the hands, feet and face, is the same disease that afflicted actor Richard Kiel, famous for his role as the metal-mouthed Jaws in the James Bond films. It affects up to 80 Australians a year but the latest and greatest treatment – pasireotide, or Signifor – is prohibitively expensive. Health Minister Sussan Ley has approved its listing on the Pharmaceutical Benefits Scheme, meaning sufferers will get access to the drug for just $38.30, or $6.20 with concessions. Ms Ley will announce the $10 million subsidy on Sunday. "The growing reality is treatments for rare diseases such as this one are often very expensive to subsidise in part due to the very small number of patients that require them," she said. "That's why we must undertake improvements to the health system. Every dollar spent on inefficiency in the health system is a dollar we cannot invest in breakthroughs like these." Sydney early childhood teacher Stephanie Maber, 23, has been on pasireotide for two years and says it has transformed her life. "Beforehand I was just in a lot of pain, I was aching all over, I had no motivation to do anything, I had no energy," she told Fairfax Media. "Within a few months of being on this drug I had so much more energy. I was just a much more pleasant person to be a round." She says the subsidy will be a huge financial help given she may have to continue on the drug for the rest of her life. The Coalition has made about $4.5 billion worth of additional medicine listings to the PBS since 2013. Kiel, also known for his role as Mr Larson in the Adam Sandler film Happy Gilmore, died in 2014 aged 74.